Social media valuable tool to recruit study participants for rare diseases
Tuesday, August 30, 2011 - 13:30
in Health & Medicine
Researchers have identified a new benefit of social media and online networking: a novel way to study rare diseases. Through patient-run websites dedicated to heart conditions and women's heart health, cardiologists are reaching out to survivors of spontaneous coronary artery dissection, also known as SCAD, a poorly understood heart condition that affects just a few thousand Americans every year.