Rare Disease in General Practice: BHD Diagnosis and Management Guidelines
Friday, December 11, 2009 - 11:36
in Health & Medicine
www.BHDsyndrome.org The positive diagnosis of a rare disease such as Birt-Hogg-Dubé syndrome can be isolating and daunting for individuals because of the lack of information available from the medical community. Similarly, scientific research into therapies for such diseases can be hampered because of the lack of commercial returns; as the saying goes: ‘money makes the world go round’!