Ask Permission To Use Newborn Data, Parents Say
Thursday, July 16, 2009 - 01:28
in Psychology & Sociology
More than three-quarters of parents would be willing to allow the use of their children's newborn screening samples for research, a new survey shows. But more than half would be unwilling to permit use if their permission was not obtained beforehand. The survey sheds light on the emerging issue of how to square parents' concerns about privacy with medical researchers' desire to use the samples.