Informed Consent Regarding Long-Term Biological Samples Is Not So Simple

Tuesday, September 16, 2008 - 00:28 in Biology & Nature

Genetic studies involving the long term storage and study of human samples hold great promise for medical research—but they also pose new threats to individuals such as uninsurability, unemployability, and discrimination, say Matthias Wjst (Institute of Genetic Medicine, Bozen, Italy) and colleagues. They argue that the traditional informed consent process—in which the researcher counsels potential study participants about the risks and benefits of taking part in a study—may no longer be appropriate when dealing with long-term studies using biological materials. Read More...

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