Clinical Trials for Rare Diseases: A Bottleneck Effect?
Friday, October 23, 2009 - 08:21
in Health & Medicine
Searching www.clinicaltrials.gov for current trials on BHD Syndrome reveals 3 studies; a) a genetic study of patients and families with BHD Sydrome; b) treatment of fibrofolliculomas with topical rapamycin and; c) another genetic study of patients with inherited urologic malignancies.